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Barrett Dorko
17-05-2008, 03:09 PM
It’s been a quiet week in Cuyahoga Falls…

Me: So, how did you feel the day I actually saw you?

Patient: (Pause) I don’t remember.

After three months of switching me daily between two very different facilities the company contracting for my services has decided to leave me in one place for the duration of my agreement. Now I can settle down, organize my records, drive in the same direction each day and maybe, just maybe, my patients will remember their reaction to care long enough for me to figure out how they’re actually doing.

My thoughts about geriatrics and the application of neuroscience to manual care have come in waves the past few weeks and I finally feel ready to commit some of them to a blog entry. This is it.


As my Aunt Alice once pointed out to my siblings and me when she saw us recoil from the crowds of unusual looking strangers in downtown Cleveland – “These are just people.” Her speech ended there but she spoke firmly and I got the point. The surface tells us nothing and unless we consider the possibilities beneath and seek some depth of knowledge we’ll reveal our prejudicial nature and miss a lot. “Looking good” for the patient is as important as it ever was, or not. What I find of interest to me is something both easily hidden and revealed within the context of their current situation. I’ve found humor, sadness, loneliness, gratitude, regret, despair, fear, desperation and determination – and all of that in a single patient over the course of a couple of sessions. These qualities are unrelated to their physical capabilities.


I’ve said in the past that people learn themselves out of pain. Movement plays a role, of course, but so does memory and attention. It’s not possible to say when any patient crosses that boundary between what they’ve known and the acquisition of new knowledge. The therapist has to probe this gently. They have to figure this out as best they can and accept what they find.


I remain convinced that even thirty seconds of Simple Contact and ideomotion can have a profound and enduring effect though I have no data to indicate this; just the quiet acceptance of the patient in my hands. Many have been unable to speak.


Every time I inch forward toward some actual control over the mountain of paperwork needed to justify care I am pushed back very firmly by someone or something that needs even more.


A variety of therapists surround me. None seem truly interested in changing the way they think or behave. If they read much it’s not obvious. Most are nice enough, I guess. I get along, but say very little about where I’ve been or what I think, that is, compared to what’s going through my head about what I could say. I’m passing through and they know it. So do I.


My parents both died in settings such as this but I never “see” my mother. Something in my brain has saved me that vision and for that I am grateful. I see my Aunt Alice though. She’s everywhere among the beautiful, smiling women in their 70s and 80s living independently in this sprawling complex. I enjoy discovering her again and remember our many visits before she smiled no more. The men simply don’t remind me of my father, but while walking by a room the other day I saw his shoulders.


After a year away from patients I’ve discovered that I can still do this, that I can sit quietly and wait, I can say the right thing and, sometimes, the wrong thing. It appears to flow naturally from me though I know how long and hard I’ve worked at its cultivation. I don’t consider myself a “natural” caregiver but the task is integral to my becoming something else. I’ll let the students and readers I’ve had and will have decide what I want that to be.

I think I know, but these days sometimes I have to work to remember

Sarah
17-05-2008, 07:15 PM
Barrett,

Last week, your essay about your father's funeral titled "With Death Comes Food" kept popping into my mind at the most inappropriate moments. My own father passed away last Friday from a sudden heart attack. He was in his yard, doing what he loved...tending to the plants. At only 67, it seems like a tragedy to most people who didn't know him. Especially when they learn that he had stopped taking his heart medication 6 months ago because he didn't like the side effects. But I see it differently. My dad lived his life exactly how he wanted to live it. He had a charisma that people were drawn to and a passion about everything he did. His greatest fear was to end up in a nursing home like the one you describe, or to lose his faculties in some way. He was proudest of his writing and had recently begun to blog. He thrived on reading about quantum physics, theology, and philosophy and reflecting on the nature of the universe. He was a large man, and always joked that when he died, he would fall like a tree, which is exactly what he did. He left behind his music (over 400 songs) and his writing as a legacy to his children and grandchildren. He loved the idea that people around the world might read his blog. His latest work, Cosmology, comprised the last nine entries. He planned to finish putting it on his blog but we will publish it in it's entirety on the website soon. www.thepilgrimtraveler.com

Sarah

Barrett Dorko
18-05-2008, 02:23 AM
Thanks for joining in Sarah. With Death Comes Food (http://www.barrettdorko.com/articles/with_death_comes_food.htm) begins with a story related to my father’s death but quickly becomes about my brothers, and me. These days I can see how the ease with which I walk away from so many patients in need of more help than I can give them may be a function of my genetics.

Sarah
18-05-2008, 06:11 AM
I understand where you're coming from Barrett, although you might be right about the genetics, there are always environmental influences on our behaviors. Losing a loved one makes one consider their priorities and the paths we've taken. I too am working at two clinics and finding it difficult to translate what I do into documentation in order for the next therapist to understand what I'm doing. After this week, I'm beginning to wonder whether or not I even enjoy being a therapist. I am certainly good at what I do, but am I still passionate about it? I am not an extrovert by any means, yet I put on the professional persona and I treat each patient as if they were my relative, meaning that I listen, believe their story, and remain nonjudgmental as possible. I often find myself drained at the end of the day with little emotionally left for my husband, until I can recharge in solitude. The curse of the introvert I suppose...is to never be completely accepted by coworkers/colleagues. So, were back to genetics. When I go back to work next week, maybe I too can remember why I'm doing this.

nari
18-05-2008, 07:33 AM
Sarah, I would love to visit the website some time to read your father's writings.

Several aspects of your last post are relevant to me, while I dissect the Cuyahoga pages.

"...until I can recharge in solitude" is one.
I found coming back from work each day required several hours of solitude where I don't have to talk. If I lack that each day, my mood is unreliable to say the least. Part of that comes from the effort to talk to colleagues and patients when I don't want to, but have to. At other times chatting and talking is good.

"The curse of the introvert...is to never be completely accepted by coworkers/colleagues."
I also find that if I am expected to talk conversation when I don't want to, quietness is taken as an indication I don't like them personally; nothing could be more false. But that is our society and I'm stuck with that. With patients, it was easier; and I am still working out exactly why this is so. Professional persona is probably quite accurate, but the dichotomy intrigues me.

Genetics may play a role, but I am unlike either of my parents who loved idle talking and long conversations, or my sister who has to be reminded constantly to stop talking. By me, at least. And she doesn't mind in the least.

Nari

Barrett Dorko
19-05-2008, 12:42 AM
Nari,

The understand the exhaustion that follows prolonged periods of "acting normally," and the best way to dispel it is, for me, quiet isolation. When I teach I always look forward to a long, solitary drive after class.

In this large department I find myself in these days periods of quiet are hard to come by.

Barrett Dorko
20-05-2008, 02:02 PM
I heard for the first time yesterday that as of June 1 the therapy staff where I’m working will be issued blue golf shirts to wear. No one had said anything to me and I’m guessing that they won’t press me on this issue. If nothing else I’ve established myself as an individual with a unique way of practicing. I think this is fine in our profession as long as we can actually defend it whenever asked. Funny thing, no one has asked me to defend it yet. In fact, no one asks me anything at all.

As far as a uniform appearance goes, well, I see it as another step in the Borgification ( http://en.wikipedia.org/wiki/Borg_(Star_Trek)) of therapy and therapists and I will refuse to enable it.

nari
20-05-2008, 02:15 PM
Uniform clothes can be helpful for patients in a large hospital where there are so many different health professionals around. It was abandoned about 5 years ago when PTs gradually stopped wearing them; and they were never compulsory anyway.

In other settings a uniform is just plain unnecessary. Individuality is something to be valued, not discouraged, and that goes for all facets of clinical life.

Nari

gerry
20-05-2008, 03:31 PM
Barrett,

Can I have your golf shirt? Maybe you could autograph it with a permanent marker?

Or how about you autograph the shirt, and Bernard could auction it off as a fund raiser for the website? ;)

gerry

Sarah
20-05-2008, 04:12 PM
Funny you should mention the golf shirts....at site #2 yesterday, I was asked why the director at site #1 hasn't gotten me a golf shirt with the logo on it yet. I just acted dumb instead of telling them that I didn't want to wear the shirt. For one thing, most normal people don't even look good in polo shirts, unless you are lean and muscular. But that's beside the point. :) I prefer my own clothes.

bernard
20-05-2008, 04:32 PM
Or how about you autograph the shirt, and Bernard could auction it off as a fund raiser for the website? ;)
That is an idea. :thumbs_up

Barrett Dorko
21-05-2008, 01:50 PM
Well this is all quite flattering but if any of my co-workers or bosses ever actually reads any of my writing they might not be all that pleased. I know that this is highly unlikely. They’ve all expressed interest and have been directed here weeks ago. None have done so.

I can object to the shirt easily and hope to do this with the silent look of disapproval my mother taught me but find that this only works on those who are paying attention and who care about my opinion. That doesn’t include everyone here by a long shot.

Perhaps my strongest personal distaste comes from my distinct understanding and regular use of the concept of peripersonal space ( http://www.sandrablakeslee.com/articles/peripersonal_space_jul04.php). The shirt clearly violates mine on several levels and I’m not going to tolerate that.